Event Details


 

Bloom's Connection: Unravelling the Mystery

May 27th, 2008 - May 28th, 2008

 

Type

National Conference or Meeting 

Venue

in-person meetings 

Contact

Sheryl Grossman
Phone: 314-863-3211
Email: info@bloomsconnect.org
Web: http://www.bloomsconnect.org 

Location

University of Illinois at Chicago
Chicago, IL 

Description

This is the first conference ever for those who experience Bloom's syndrome and their families and friends. The conference is designed to provide information on the independent living movement to an underserved segment of the disability community. Participants will share experiences, tips, and strategies for "living the good life."

Bloom's syndrome is an autosomal recessive genetic condition, meaning that both parents must be carriers in order to pass it along to a child. The syndrome is a rare condition affecting all of the body systems. While the syndrome impacts individuals in different ways, there are some common characteristics: a long, narrow face; small and slight stature; and decreased immune system responses. 

Sponsor

Bloom's Support Network 

Keywords

 

 
HCBS / Clearinghouse for the Community Living Exchange Collaborative / (http://www.hcbs.org)